Summary
Organization name
Deater Foundation Inc.
Tax id (EIN)
23-2612906
Address
PO Box 255White Deer, PA 17887
HSAN1, previously known as HSN1, stands for Hereditary Sensory and Autonomic Neuropathy Type 1. HSAN1 is a little-known, peripheral neuropathy characterized by severe sensory loss (ie. temperature, pressure, pain) starting in the extremities, usually in the feet first. This sensory loss often leads to:
HSAN1 is a dominantly inherited disease, meaning that a child of an affected parent has a 50/50 chance of also getting the disease. Symptoms of HSAN1 typically become noticeable by the late teens or second decade of life. Although HSAN1 is not a terminal disease, it is a progressively debilitating disease, and many affected patients often require surgeries or the use of walking aids, such as canes, braces, or wheelchairs.
Organization name
Deater Foundation Inc.
Tax id (EIN)
23-2612906
Address
PO Box 255