Deater Foundation Inc.

A nonprofit organization

$3,575 raised by 23 donors

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HSAN1, previously known as HSN1, stands for Hereditary Sensory and Autonomic Neuropathy Type 1.  HSAN1 is a little-known, peripheral neuropathy characterized by severe sensory loss (ie. temperature, pressure, pain) starting in the extremities, usually in the feet first.  This sensory loss often leads to:

  • Painless injuries
  • Chronic skin ulcers that have difficulty healing
  • Progressive destruction of underlying bones
  • Bone infections
  • Chronic shooting pains in the extremities
  • Muscle wasting
  • Amputation of fingers or toes
  • Eventual motor impairment

HSAN1 is a dominantly inherited disease, meaning that a child of an affected parent has a 50/50 chance of also getting the disease. Symptoms of HSAN1 typically become noticeable by the late teens or second decade of life. Although HSAN1 is not a terminal disease, it is a progressively debilitating disease, and many affected patients often require surgeries or the use of walking aids, such as canes, braces, or wheelchairs.

Organization Data

Summary

Organization name

Deater Foundation Inc.

Tax id (EIN)

23-2612906

Address

PO Box 255
White Deer, PA 17887

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